Brasília, Brazil – A nine-year-old boy, Frederico Goldsztein, was faced with a life-altering diagnosis of Medulloblastoma, the most common form of brain cancer in children. Living in Brazil with his family, Frederico enjoyed a healthy life filled with school and reading, particularly indulging in Agatha Christie novels. However, his world was turned upside down with the devastating news of his diagnosis.
“It’s simply, the worst thing that that, that a father or mother can hear,” shared Fernando Goldsztein, Frederico’s father, emphasizing the heartbreaking reality faced by families dealing with childhood cancer. With a desire to find a cure for his son’s cancer and minimize the challenging side effects of treatment, Fernando embarked on a mission from Brazil to the United States, seeking hope and breakthroughs at Children’s National Medical Center in Washington D.C.
The journey towards finding a cure for Medulloblastoma took an optimistic turn with the relentless fundraising efforts of Fernando and the collaboration with doctors at the renowned medical center. Recognizing the lack of progress in treatments for children with brain tumors, Fernando was determined to make a difference, especially after Frederico’s heartbreaking relapse in 2019.
Teaming up with a leading children’s brain tumor specialist in the U.S., the Medulloblastoma Initiative was born. This initiative brought together a global team of top researchers, focusing specifically on innovative approaches for treating Medulloblastoma more effectively and efficiently.
Dr. Roger Packer, the Director of the Brain Tumor Program at Children’s National Medical Center, highlighted the urgency and importance of developing new therapies for children with brain tumors. The current treatments, developed in the 1980s, often result in lifelong cognitive and developmental challenges for young patients, underscoring the critical need for advancements in pediatric oncology.
With the potential for two FDA-approved treatments on the horizon, including revolutionary immunological approaches using mRNA technology, the future looks promising for children battling Medulloblastoma. These novel therapies offer hope for a cure with fewer side effects, providing a beacon of light for families facing the daunting challenges of childhood cancer.
As the research and fundraising efforts continue, Fernando remains dedicated to supporting other families in similar circumstances, offering a glimmer of hope to those who see the Medulloblastoma Initiative as their lifeline. The journey ahead may be long, but with ongoing support, collaboration, and innovation, there is optimism for a brighter future for children battling brain tumors worldwide.