Las Vegas, Nevada – World-renowned singer Celine Dion recently shared a vulnerable moment in a new documentary, “I Am: Celine Dion.” The film, released on Prime Video, captures Dion’s experience with stiff-person syndrome, a rare neurological disease that she was diagnosed with in December 2022.
In the documentary, viewers witness Dion suffering from a severe spasm during a physical therapy session, showcasing the painful reality of living with this condition. The footage shows a physical therapist guiding Dion through the spasm, highlighting the challenges she faces. Despite the pain, Dion bravely reassures those around her that she is okay, showcasing her resilience in the face of adversity.
Stiff-person syndrome affects approximately one or two out of every 1 million people and is characterized by stiffening in the torso and limbs, along with severe muscle spasm episodes. People with this condition have low levels of a chemical in the brain called GABA, which can lead to intense muscle spasms triggered by stress, noise, or touch.
While there is no cure for stiff-person syndrome, treatment focuses on managing symptoms with medications like sedatives, muscle relaxants, and steroids. Immunotherapies have also shown promise in reducing stiffness and sensitivity to stimuli. Physical and aqua therapies can help improve patients’ quality of life and reduce the frequency of spasms.
Dion’s physician, Dr. Amanda Piquet, explained that the spasm shown in the documentary was a severe episode that started in Dion’s foot and quickly spread throughout her body. Despite the intensity of the spasm, Piquet clarified that it was not a seizure but rather a symptom of the condition that can be triggered by anxiety and stress.
Overall, Dion’s openness about her experience with stiff-person syndrome sheds light on a rare condition and may inspire further research and resources. Her journey of resilience and recovery offers hope to others living with the condition, showing that recovery is possible even in the face of significant challenges.